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"ABSTRAKOrang tua sebagai family caregiver utama memegang peranan penting dalam tumbuh kembang serta anak dengan epilepsi (ADE). Penelitian ini bertujuan untuk melihat hubungan antara affiliate stigma, caregiver burden, dan dampak keduanya pada kualitas hidup. Sebanyak 48 orang tua yang merupakan caregiver primer dengan usia minimal 25 tahun dan memiliki ADE yang berusia maksimal 16 tahun diminta untuk berpartisipasi pada penelitian korelasional dengan mengisi kuesioner daring maupun luring. Affiliate stigma diukur menggunakan Affiliate Stigma Scale, caregiver burden diukur menggunakan Zarit Burden Interview (ZBI), dan kualitas hidup family caregiver ADE diukur menggunakan WHOQOL-BREF yang dikembangkan oleh WHO. Berdasarkan analisis korelasi menggunakan Pearson Product Moment didapatkan hasil korelasi yang

signifikan dan negatif antara affiliate stigma dan kualitas hidup (r (48) = -0,393, p < 0,01), caregiver burden dan kualitas hidup (r (48) = -0,516, p < 0,01). Selain itu, affiliate stigma

dan caregiver burden juga memiliki hubungan positif yang signifikan (r (48) = 0,657, p < 0,01). Dengan demikian, dapat dikatakan bahwa semakin besar skor affiliate stigma dan caregiver burden, semakin rendah skor kualitas hidup family caregiver ADE. Hasil penelitian ini sesuai dengan penelitian terdahulu yang melihat hubungan antara ketiganya pada populasi caregiver. Temuan ini dapat digunakan sebagai landasan untuk rancangan intervensi pada family caregiver epilepsi untuk meminimalisir affiliate stigma dan caregiver burden yang dialami.

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ABSTRACT

Parents usually act as a primary caregiver and have an important role in children with epilepsy (CWE) development. This study aims to analyse the relationship between affiliate stigma, caregiver burden, and both effects on quality of life. A total of 48 parent whom a primary caregiver of CWE aged at least 25-year old with CWE aged at least 16- year old were asked to participate in this correlational study and fill the online or offline questionnaires. Affiliate Stigma was measured by Affiliate Stigma Scale, whereas caregiver burden and quality of life was measured by Zarit Burden Interview (ZBI) and WHOQOL-BREF, respectively. Using Pearson Product Moment, the result shows significant and negative relationships between affiliate stigma and quality of life (r (48) = -0,393, p < 0,01), caregiver burden and quality of life (r (48) = -0,516, p<0,01). The analyses also shows that affiliate stigma and caregiver burden have a significant and positive relationship too (r (48) = 0,657, p < 0,01). In conclusion, the high score of affiliate stigma and caregiver burden indicates the lower score of quality of life in family caregiver CWE. This study shows a similar results with another similar study on caregiver. This finding may be useful in designing a intervention on family caregiver CWE to minimalize the felt affiliate stigma and caregiver burden."

"Children of "siri" marriages are deemed at a disadvantage under the mariage Act, Law No. 1 Year 1974, as they ae regarded as illegitimate under state law. As a legal consequence, siri children do not derive civil rights, particulary inheritance, from their father and the father's family. This 2012 ruling of the Constitutional Courth granting judicial review of Article 43 paragraph (1)of the Marriage Act has effectively amended the said law. Siri children, including those born from mat'ah marriages, common law unions and adulterous relationships, are now given equal right accorded to legitimate children if blood ties with the father is proven or established by science and technologi and/or other evidence under the law. This paper discussed the implications of this ruling on the civil rights of illegitimate children flowing from their parental relationship with their biological father."

"here is a palpable sense of excitement from the editors of each volume that this is a critical period in the development of the field. The four volumes are edited by leading scholars in the field, who have carefully selected the volumes' contributing authors for their ability to summarise their topics succinctly, and tease out the issues that are likely to be the focus of research in the coming period. As with previous editions, this new edition of the Handbook will be a lodestar for practitioners and researchers in the field.""-Diane FitzMaurice, Library Information Supervisor, Department."

"""There is a palpable sense of excitement from the editors of each volume that this is a critical period in the development of the field. The four volumes are edited by leading scholars in the field, who have carefully selected the volumes' contributing authors for their ability to summarise their topics succinctly, and tease out the issues that are likely to be the focus of research in the coming period. As with previous editions, this new edition of the Handbook will be a lodestar for practitioners and researchers in the field.""-Diane FitzMaurice, Library Information Supervisor, Department."