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Yati Afiyanti
"Objective: The number of gynecological cancer survivors is
increasing in Indonesia, and these women often require physical
and emotional support from their male partners as primary
caregivers. However, the male caregiver`s need for biological,
psychological, and social support is often neglected. This study
aims to assess the demographic and clinical determinants
affecting the unmet supportive care needs of the gynecological
cancer survivors` husbands in Indonesia. Methods: This
cross‑sectional survey involved 152 husbands of survivors who
were recruited by a consecutive sampling method in two national
referral hospitals. A self‑administered Cancer Survivors` Partners
Unmet Needs Questionnaire was used for data collection.
Multiple linear regression was performed to analyze the data.
Results: The majority of participants (97.4%) reported at least one
unmet need. The primary unmet needs were legal services (71.1%),
financial support (70.4%), cancer recurrence concerns (69.7%), and
ongoing health support (66.4%). These needs were significantly
associated with the wife`s radio‑chemotherapy and lower
household income (P < 0.01) and also related to the husband`s
education level, duration of caregiving, and wife`s cancer stage.
Conclusions: Husbands of gynecological cancer survivors in
Indonesia reported a need for legal, financial, and health‑care
information and assistance. Multidisciplinary professionals
should be involved in developing policy and interventions which
facilitate the social‑economic protection of survivors and their
husbands, as well as comprehensive care needs to enhance the
women`s survival rate."
Wolter Kluwer, 2021
MK-Pdf
Artikel Jurnal  Universitas Indonesia Library
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Yati Afiyanti
"Objectives: This study aimed to gain insight into the unmet care needs and health care service barriers experienced by Indonesian gynecological cancer survivors after cancer therapy.
Data Sources: Twenty purposively selected women who had completed gynecological cancer therapy for at least 1 year participated in a descriptive qualitative study. Data were collected through in-depth interviews
and thematically analyzed.
Conclusion: The analysis constructed two themes and seven subthemes: (a) unmet care needs (subthemes: late side effects; cancer recurrence; stigma of cancer transmission; social-economic concerns), (b) deficient
functions of health care services (subthemes: short consultation time; unempathetic health professionals; and inefficient time and cost for the health care services). The gynecological cancer survivors experienced
shortages of informational, psychological, and socioeconomic support after cancer therapy because of the deficient quality of the health care services.
Implication for Nursing Practice: Nursing interventions couldmitigate the unmet care needs of gynecological cancer survivors after cancer therapy through patient-centered care services and multidisciplinary collaboration."
Elsevier, 2021
MK-Pdf
Artikel Jurnal  Universitas Indonesia Library
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Nurul Adilah
"Tujuan: Mendeskripsikan tren angka unmet need untuk utilisasi pelayanan kesehatan gigi dan mulut di Indonesia tahun 1993-2014.
Metode: Penelitian ini merupakan penelitian analitik deskriptif dengan desain cohort menggunakan data sekunder dari Indonesia Family Life Survey (IFLS) gelombang 1-5 yaitu tahun 1993-2004 (n=122.575). Analisis deskriptif dilakukan pada perceived need dan juga utilisasi untuk mendapatkan proporsi dari keduanya dan mendapatkan variabel unmet need serta regresi logistik untuk melihat hubungan antara perceived need, unmet need, dan utilisasi pelayanan kesehatan gigi dan mulut dengan berbagai karakteristik sosiodemografi penduduk Indonesia pada tahun 1993-2014.
Hasil: Hanya sebanyak 12.86% penduduk Indonesia yang memiliki perceived need  untuk pelayanan kesehatan gigi dan mulut dan hanya 15.13% yang melakukan utilisasi pelayanan kesehatan gigi dan mulut pada tahun 1993-2014 yang kemudian dari keduanya didapatkan hasil bahwa 76.87% penduduk yang memiliki kebutuhan akan perawatan gigi dan mulut tidak mendapatkan perawatan yang mereka butuhkan (unmet need). Hasil dari regresi logistik menunjukkan kemungkinan terjadinya unmet need yang signifikan pada responden berusia 45-59 tahun, berpendidikan kurang dari pendidikan dasar (<9 tahun), bekerja, dan tidak memiliki jaminan kesehatan pada tahun 1993-2014.
Kesimpulan: Penelitian ini menunjukkan bahwa proporsi unmet need di Indonesia pada tahun 1993-2014 masih cukup tinggi.

Objectives: Describe the trend of unmet need for utilization of dental and oral health services in Indonesia in 1993-2014.
Method: This research is a descriptive analytic study with a cohort design using secondary data from the Indonesia Family Life Survey (IFLS) waves 1-5, 1993-2004 (n=122.575). Descriptive analysis was carried out on perceived need and also utilization to get the proportion of both and obtain the unmet need variable and logistic regression to see the relationship between perceived need, unmet need, and utilization of dental and oral health services with various sociodemographic characteristics of the Indonesian population in 1993-2014.
Result: Only 12.86% of Indonesia's population who has perceived need  for dental and oral health services and only 15.13% were doing utilization of dental and oral health services in the year 1993 to 2014 which then of the two showed that 76.87% of the population who have a need for dental and oral care do not get the care they need (unmet need). The results of the logistic regression showed the significant possibility of unmet need on respondents aged 45-59 years, educated less than basic education (<9 years), worked, and did not have health insurance in 1993-2014.
Conclusion: This study shows that the proportion of unmet needs in Indonesia in 1993-2014 is still high.
"
Jakarta: Fakultas Kedokteran Gigi Universitas Indonesia, 2021
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UI - Skripsi Membership  Universitas Indonesia Library
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Ida Ayu Made Ari Santi Tisnasari
"Kanker payudara merupakan keganasan yang paling sering terjadi pada perempuan di seluruh dunia. Kanker payudara maupun pengobatannya memberikan dampak langsung pada segala aspek kehidupan seorang perempuan termasuk pada penyintas kanker payudara, sehingga memengaruhi pemenuhan kebutuhannya. Tujuan penelitian ini adalah mengeksplorasi masalah kesehatan dan kebutuhan yang tidak terpenuhi (unmet need) pada penyintas kanker payudara. Penelitian ini menggunakan desain penelitian kualitatif deskriptif. Wawancara semi terstruktur dilakukan pada 14 orang dalam penelitian ini. Hasil penelitian ini memunculkan lima tema antara lain: 5 tema utama yaitu : 1) Masalah Kesehatan pada Penyintas Kanker Payudara; 2) Cara Mengatasi Stigma Masyarakat tentang Penyintas Kanker; 3) Kebutuhan Mendapatkan Pelayanan Kesehatan Terbaik; 4) Tidak Terpenuhinya Kebutuhan Informasi tentang Perawatan Kanker; serta 5) Adanya Masalah Finansial (Financial Burden). Masalah kesehatan yang dialami oleh penyintas kanker payudara seperti kelelahan, ketakutan akan kekambuhan kanker, hingga masalah spiritual yang dirasakan dapat berdampak buruk bagi penyintas kanker payudara seperti ketakutan untuk melakukan restaging. Peran dari perawat onkologi maupun tenaga profesional lainnya dibutuhkan untuk memahami masalah dan kebutuhan yang tidak terpenuhi pada penyintas kanker payudara demi meningkatnya angka harapan hidup atau survival rate pasca perawatan kanker di Indonesia.

Breast cancer is the most common malignancy in women worldwide. Breast cancer and its treatment have direct impacts on all aspects of a woman's life, also on breast cancer survivors, thus affecting the achievement of their needs. The purpose of this study was to explore health problems and unmet needs in breast cancer survivors. This study used descriptive qualitative method. Semi-structured interviews were conducted on 14 survivors in this research. The results of this study find five themes, including: 1) Health Problems of Breast Cancer Survivors; 2) How to Address Society's Stigma about Cancer Survivors; 3) The need to get best health services; 4) Unfulfilled Information Needs about Cancer Treatment; and 5) Existence of Financial Burden. Health problems experienced by breast cancer survivors such as fatigue, fear of cancer recurrence, and perceived spiritual problems make breast cancer survivors afraid to do restaging. Therefore, role of oncology nurses and other professionals is needed to understand the problems and unmet needs of breast cancer survivors in order to increase life expectancy or survival rate after cancer treatment in Indonesia. "
Depok: Fakultas Ilmu Keperawatan Universitas Indonesia, 2022
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UI - Tesis Membership  Universitas Indonesia Library
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Sitorus, Kristiani
"Kanker payudara termasuk penyakit kronis yang sangat kompleks dan lebih dari 80% kasus didiagnosis telah berada pada stadium lanjut di Indonesia. Sehingga kebutuhan akan perawatan paliatif sangat penting diberikan pada pasien kanker payudara sejak awal diagnosis. Proses pengobatan yang panjang membuat kebutuhan yang berbeda tiap perjalanan penyakit. Penelitian ini bertujuan untuk mengeksplorasi pengalaman pasien kanker payudara yang menjalani perawatan paliatif terkait berbagai kebutuhan yang belum terpenuhi dan kaitannya dengan teori keperawatan Peaceful end of life (Peol). Metode penelitian kualitatif dengan pendekatan fenomenologi deskriptif. Wawancara dilakukan pada 14 pasien kanker payudara yang menjalani perawatan paliatif. Hasil penelitian didapatkan enam tema utama terkait kebutuhan yang tidak terpenuhi. Kebutuhan yang paling dominan yaitu kebutuhan dalam menggapai ‘New normal’ untuk kembali beraktivitas dengan semangat dan penuh harapan. Perawat diharapkan memiliki waktu yang lebih banyak dengan pasien untuk mendiskusikan makna perawatan paliatif bersama keluarga sehingga dapat saling mrndukung dalam memenuhi kebutuhsn pmenjalani perawatan paliatif. Teori Peol belum sepenuhnya dapat diterapkan pada penelitian ini karena pasien kanker payudara belum siap untuk membicarakan tentang kematian

Breast cancer is a very complex chronic disease and more than 80% of diagnosed cases have been diagnosed at an advanced stage in Indonesia. Therefore, the need for palliative care is very important for breast cancer patients from the beginning of diagnosis. The long treatment process makes different needs for each disease journey. This study aims to explore the experience of breast cancer patients undergoing palliative care related to various unmet needs and their relationship with the Peaceful end of life (Peol) nursing theory. Qualitative research method with a descriptive phenomenological approach. Interviews were conducted on 14 breast cancer patients undergoing palliative care. The results of the study obtained six main themes related to unmet needs. The most dominant need is the need to achieve the 'New Normal' to return to activities with enthusiasm and hope. Nurses are expected to have more time with patients to discuss the meaning of palliative care with their families so that they can support each other in meeting the needs of palliative care. Peol's theory has not yet been fully applicable to this study because breast cancer patients are not yet ready to talk about death."
Depok: Fakultas Ilmu Keperawatan Universitas Indonesia, 2024
T-pdf
UI - Tesis Membership  Universitas Indonesia Library
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Meyke Rosdiana
"Perubahan yang terjadi akibat dampak dari kanker ginekologi dan terapinya tidak hanya dialami oleh penyintas kanker ginekologi tetapi juga pada pasangan mereka termasuk pada hubungan intimasi penyintas kanker dan pasangannya. Penelitian ini bertujuan mengeksplorasi adaptasi hubungan intimasi pada suami penyintas kanker ginekologi di Indonesia. Tujuh suami penyintas kanker ginekologi berpartisipasi dalam penelitian deskriptif kualitatif melalui wawancara mendalam. Data dianalisis menggunakan metode analisis tematik. Terdapat tiga tema utama dan 4 sub tema berdasarkan analisis tematik. Tema yang dihasilkan dari data wawancara adalah berkurangnya hasrat dan keintiman seksual (sub tema: hasrat dan frekuensi hubungan seksual menurun; tidak bisa disalurkan lewat hubungan seksual), cara lain untuk memenuhi kebutuhan seksual dan menjadi perawat untuk istri dibanding sebagai kekasih (sub tema: membantu pekerjaan rumah tangga dan merawat istri; pemulihan istri adalah tujuan utama).

Changes that occur due to the impact of gynecological cancer and its therapy are not only experienced by gynecological cancer survivors but also in their partners, including the intimate relationship between cancer survivors and their partners. This study aims to explore the adaptation of intimate relationships among husbands of gynecological cancer survivors in Indonesia. Seven husbands of gynecological cancer survivors participated in a qualitative descriptive study through in-depth interviews. Data were analyzed using thematic analysis methods. There are three main themes and 4 sub themes based on thematic analysis. The themes generated from the interview data are reduced sexual desire and intimacy (sub-theme: decreased sexual desire and frequency; cannot be channeled through sexual intercourse), other ways to meet sexual needs and become a caregiver for a wife rather than as a lover (sub-theme: help housework and taking care of the wife; wife's recovery is the main goal)."
Depok: Fakultas Ilmu Keperawatan Universitas Indonesia, 2021
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UI - Tesis Membership  Universitas Indonesia Library
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Apriyani
"

Pendahuluan: Penyintas kanker terus menghadapi berbagai masalah fisik, psikologis, sosial, dan keuangan setelah menyelesaikan pengobatan primer. Ketakutan kambuh merupakan salah satu masalah psikososial yang sering dilaporkan oleh penyintas kanker ginekologi. Penelitian ini bertujuan untuk mengeksplorasi secara mendalam persepsi ketakutan kambuh pada penyintas kanker ginekologi.

Metode: Penelitian ini menggunakan pendekatan fenomenologi interpretatif. Partisipannya adalah 15 penyintas kanker ginekologi berusia 19-60 tahun dan telah menyelesaikan tahapan pengobatan primer. Pengumpulan data melalui wawancara semi terstruktur mendalam. Analisis data menggunakan analisis tematik.

Hasil: Analisis tematik memunculkan 6 tema yaitu: 1) pemicu ketakutan kambuh. 2) hal yang ditakutkan jika terjadi kekambuhan. 3) dampak ketakutan kambuh. 4) upaya yang dilakukan untuk mengalihkan ketakutan kambuh. 5) upaya yang dilakukan untuk mencegah kekambuhan. 6)  ketidakpastian tentang kekambuhan.

Simpulan: Ketakutan kambuh merupakan pengalaman multidimensi yang yang dipicu oleh berbagai faktor dan memiliki dampak terhadap berbagai aspek kehidupan penyintas kanker


Introduction: Cancer survivor continue to face a variety of phisical, psychological, social and financial problems after completing primary treatment. Fear of recurrence is one of the psichosocial problems frequently reported by gynecologic cancer survovor. This study aimed to explore in depth the perceived fear of recurrence in gynecologic cancer survivors.

Methods: This study used an interpretative phenomenological approach. The participans were 15 gynecologic cancer survivors aged 19-60 years and had completed the primary treatment stage. Data were collected through indepth semi stuctured interviews. Data analysis used thematic analysis.

Result: Thematic analiysis revealed 6 themes, namely: 1) triggers of fear of recurrence. 2) things that are feared if there is a relapse. 3) the impact of fear of recurrence. 4) effort made to divert the fear of recurrence. 5) effort made to prevent recurrence. 6) uncertainty about fear of recurrence.

Conclucion: Fear of recurrence is a multidimensional experiences that is trigered by various factors and has an impact on various aspect of cancer survivor lives."

Depok: Fakultas Ilmu Keperawatan Universitas Indonesia, 2024
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UI - Tesis Membership  Universitas Indonesia Library
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Tina Mawardika
"ABSTRAK
Nama : Tina MawardikaProgram Studi : Magister Ilmu Keperawatan Universitas IndonesiaJudul :Perbedaan Kebutuhan Perawatan Suportif Pasien Kanker Ginekologi di Rawat Inap dan Rawat Jalan. Pelayanan kesehatan yang diterima di rawat inap dan rawat jalan dapat memunculkan perbedaan kebutuhan perawatan suportif. Penelitian cross-sectional ini bertujuan untuk mengidentifikasi perbedaan antara kebutuhan perawatan suportif pada pasien kanker ginekologi di rawat inap dan rawat jalan. Tehnik consecutive sampling diakukan untuk memilih 200 pasien kanker ginekologi. Hasil penelitian menunjukkan bahwa sebagian besar 83 pasien di rawat inap memerlukan kebutuhan perawatan suportif terutama pada domain fisik 80 dan domain psikologi 84 dan 40 pasien di rawat jalan memerlukan kebutuha perawatan terutama pada domain sistem informasi kesehatan 78 . Terdapat perbedaan yang signifikan secara statistik antara kebutuhan perawatan pada pasien kanker ginekologi di rawat inap dan rawat jalan ? value = 0,000 p le; 0,05 dan nilai OR 43,9, maka dapat disimpulkan pasien di rawat inap kebutuhan perawatan suportifnya meningkat 43,9 kali dibandingkan dengan pasien di rawat jalan. Penilaian kebutuhan perawatan suportif berguna untuk mengevaluasi kebutuhan perawatan suportif pasien kanker ginekologi di rawat inap maupun rawat jalan sehingga intervensi yang diberikan tepat guna dan tepat sasaran. Kata Kunci: Kebutuhan perawatan suportif, status perawatan, kanker ginekologi.

ABSTRACT
Name Tina MawardikaProgram Study Faculty Of Nursing Indonesia UniversityTittle The difference of Supportive Care Needs in inpatient and outpatient gynecologic cancer patient. Health services that performed at inpatient and outpatient care can cause different supportive care needs. This cross sectional study aims to identify the differences of supportive care needs in inpatient and outpatient gynecologic cancer patient. Consecutive sampling techniques were undertaken to select 200 gynecological cancer patients. The results showed that of patients undergoing hospitalization required supportive care needs, especially in the physical 80 and pshycologic domain 84 , 40 of patients who underwent outpatient care require treatment especially in the information system domain 78 . Acording to statistical result, there was a different between inpatients and outpatients supportive care needs value 0,000 p le 0.05 OR 43,9. It means that inpatient rsquo s supportive care needs increase 43,9 compared with outpatient supportive care needs. Assessment of care needs is useful to evaluate the supportive care needs of gynecological cancer patients not only inpatient but also outpatient. That rsquo s way the intervention is given efficient and on target. Key Words Supportive Care Needs, Care Status, Gynecology Cancer. "
2017
T47563
UI - Tesis Membership  Universitas Indonesia Library
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Diah Martina
"ABSTRAK
LatarBelakang: Di Indonesia insidens keganasan meningkat dan mayoritas datang pada stadium lanjut sehingga peran layanan paliatif sangat penting. Profil unmet needs pada pasien keganasan meliputi seluruh stadium belum tersedia di Indonesia dan di RSCM.Unmet needs diduga berperan pada kualitas hidup pasien keganasan. Tujuan: Mengetahui profil unmet palliative needs dan kualitas hidup pasien keganasan di RSCM. Metode: Studi ini merupakan studi potong lintang dengan metode pengambilan sampel secara konsekutif di poliklinik dan gedung rawat inap RSCM sejak bulan September hingga Desember 2015. Profil unmet needs diperoleh menggunakan kuesioner PNPC-sv sedangkan kualitas hidup dinilai dengan kuesioner EORTC QLQ-C30. Kriteria inklusi adalah pasien keganasan berusia 18 tahun atau lebih yang bersedia mengikuti studi. Kriteria eksklusi adalah pasien dengan gangguan kognitif, afektif, atau kondisi umum lemah sehingga tidak memungkinkan pengisian kuesioner. Hasil: Sejumlah 329 pasien didapatkan melalui consecutive sampling di poliklinik dan gedung A RSCM.Unmet needssecara umum masih tinggi dengan dominasi pada ranah fisik pada kisaran 59,5-73,2%; spiritual 58,1-78,1%; sosial (masalah dengan pasangan 58,8%; kesulitan menemukan orang untuk diajak bicara 66,1%), psikologis (takut dengan penderitaan akibat penyakitnya 56,7%; tidak siap dengan kondisi masa depan 62,9%) dan finansial (kehilangan penghasilan, 51,3%). Kualitas hidup global 66,7 dengan kecenderungan skor yang lebih baik pada item unmet needs yang lebih sedikit. Kesimpulan: Unmet palliative needs ranah spiritual, fisik, psikologis, sosial, dan finansial masih tinggi, dengan dominasi aspek spiritual dan fisik. Skor kualitas hidup global pasien keganasan di RSCM adalah 66,7, dengan skala fungsional terendah pada fungsi peran dan skala simtomatik tertinggi pada nyeri, fatik, dan masalah finansial

ABSTRACT
Background: The incidence of cancer is increasing globally. In Indonesia the majority of them admitted at advanced stage where the target of treatment is to support the best possible quality of life.Unmet palliative needs are thought to be associated with quality of life and influenced by cultural background.The data regarding unmet palliative needs among all stages of cancer patients in Indonesia is limited. Objectives: To know unmet palliative needs profile and quality of life of cancer patients in RSCM. Method: This is a cross sectional study using consecutive sampling method in outpatient and inpatient clinic of Cipto Mangunkusumo Hospital since September to December 2015. Unmet palliative needs was evaluated using PNPC-sv while quality of life was evaluated with EORTC QLQ-C30. Inclusion criterias werecancer patients aged 18 years or more and approved to join the study. Exclusion criterias were cognitive or affective disorders, and medically unstable patient. Result: Three hundred twenty nine cancer patients joined the study. In general, unmet needs prevalence were high, with predominance of physical(59.5-73.2%); spiritual (58.1-78.1%); social (problems in the relationship with life companion 58.8%; difficulties in finding someone to talk to 66.1%), psychological (fear of physical suffering 56,7%; difficulty coping with the unpredictability of the future 62.9%) and financial (loss of income because of the disease, 51.3%). Global quality of life was 66.7 with a trend of better score in less items of unmet needs. Conclusion: The proportion of unmetspiritual, physical, phsycological, social, and financial needs are still high, with predominance of spiritual and physical domain. Global quality of life score of cancer patients in RSCM is 66.7, the lowest functional scale was role and highest symptomatic scale were pain, fatigue, and financial problems"
2016
T-Pdf
UI - Tesis Membership  Universitas Indonesia Library
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