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"This book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts."

"ABSTRAK Kanker merupakan penyakit dengan insiden kematian yang besar yang menyebabkan permasalahan yang kompleks pada anak. Tujuan dari studi kasus ini adalah melakukan analisis optimalisasi perawatan paliatif melalui Pediatric Palliative Screening Scale Skala PaPaS pada anak kanker dengan pendekatan Teori Peaceful End of Life PEOL . Lima kasus terpilih menunjukkan adanya masalah biologis, psikologis dan spiritual. Pendekatan Teori PEOL mampu mengatasi masalah keperawatan dengan standar domain bebas nyeri, rasa nyaman, dihargai dan dihormati, kedamaian serta kedekatan dengan orang yang bermakna. Hasil skrining kebutuhan perawatan paliatif pada anak kanker menggunakan Skala PaPaS didapatkan mayoritas kebutuhan paliatif level tinggi. Penerapan Teori PEOL bersamaan dengan skala PaPaS direkomendasikan sebagai pendekatan untuk mencapai asuhan keperawatan paliatif yang optimal.

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ABSTRACTCancer is a disease with large number of death incidence that causes complicated problems in children. The purpose of this study analyze palliative care optimalization use Pediatric Palliative Screening Scale PaPaS Scale in cancer children with the Peaceful End of Life Theory approach. Five cases were chosen to show a biological, psychological and spiritual problem. The Peaceful End of Life Theory PEOL is able to overcome nursing problems by domain standard of painless, comfortable, respect and dignity, peaceful and closeness with meaningful people. The results of screening found high level of majority palliative needs. The application of PEOL Theory along with PaPaS Scale is recommended as an approach to achieve optimal palliative nursing care."

"Gangguan oksigenasi merupakan masalah yang sering terjadi pada anak paliatif yang dirawat di ruang PICU dan sebagian besar anak mendapatkan bantuan ventilasi mekanik sehingga Integrasi perawatan pasien paliatif di ruang PICU merupakan hal yang penting. Tujuan penulisan karya ilmiah ini untuk memberikan gambaran asuhan keperawatan pasien paliatif dengan gangguan oksigenasi di ruang PICU dengan panduan intervensi perawatan pasien paliatif melalui pendekatan teori kenyamanan Kolcaba. Terdapat lima kasus anak paliatif yang mengalami gangguan oksigenasi dan diberikan asuhan keperawatan melalui pendekatan teori kenyamanan Kolcaba. Aplikasi teori kenyamanan Kolcaba efektif dalam memberikan kenyamanan anak paliatif yang mengalami gangguan oksigenasi di ruang PICU yang meliputi konteks kenyamanan fisik, psikospiritual, sosiokultural dan lingkungan. Panduan intervensi perawatan pasien paliatif di ruang PICU terbukti efektif untuk meningkatkan pengetahuan dan sikap perawat terkait perawatan pasien paliatif. Panduan intervensi ini dapat diaplikasikan oleh perawat untuk memberikan intervensi yang sesuai pada pasien paliatif di ruang PICU.Gangguan oksigenasi merupakan masalah yang sering terjadi pada anak paliatif yang dirawat di ruang PICU dan sebagian besar anak mendapatkan bantuan ventilasi mekanik sehingga Integrasi perawatan pasien paliatif di ruang PICU merupakan hal yang penting. Tujuan penulisan karya ilmiah ini untuk memberikan gambaran asuhan keperawatan pasien paliatif dengan gangguan oksigenasi di ruang PICU dengan panduan intervensi perawatan pasien paliatif melalui pendekatan teori kenyamanan Kolcaba. Terdapat lima kasus anak paliatif yang mengalami gangguan oksigenasi dan diberikan asuhan keperawatan melalui pendekatan teori kenyamanan Kolcaba. Aplikasi teori kenyamanan Kolcaba efektif dalam memberikan kenyamanan anak paliatif yang mengalami gangguan oksigenasi di ruang PICU yang meliputi konteks kenyamanan fisik, psikospiritual, sosiokultural dan lingkungan. Panduan intervensi perawatan pasien paliatif di ruang PICU terbukti efektif untuk meningkatkan pengetahuan dan sikap perawat terkait perawatan pasien paliatif. Panduan intervensi ini dapat diaplikasikan oleh perawat untuk memberikan intervensi yang sesuai pada pasien paliatif di ruang PICU.

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Impaired oxygenation is a problem that often occurs in palliative children who are treated in the PICU and most children receive mechanical ventilation assistance so that integration of palliative care in the PICU is important. The purpose of writing this scientific paper is to provide an overview of nursing care for palliative patients with impaired oxygenation in the PICU with guidance for palliative patient care interventions through the Kolcaba comfort theory approach. There were five cases of palliative children who experienced impaired oxygenation and were given nursing care through the Kolcaba comfort theory approach. The application of Kolcaba's theory of comfort is effective in providing comfort for palliative children who have impaired oxygenation in the PICU which includes the context of physical, psychospiritual, sociocultural and environmental comfort. Guidelines for palliative care interventions in the PICU room have proven to be effective in increasing nurses' knowledge and attitudes regarding palliative patient care. This intervention guide can be applied by nurses to provide appropriate interventions for palliative patients in the PICU."

"When a person suffers from advanced, progressive illness, palliative care ? treatments that improve the physical and psychological quality of life of patients and their families ? can be just as important as treatments that aim to slow or prevent disease progression. Aimed at GPs and trainees, Palliative Care in Clinical Practice offers an accessible and practical introduction to palliative medicine, including a chapter devoted to each of the key areas of symptom management. Clearly and concisely written and fully illustrated throughout, it will be a useful resource for all healthcare professionals who wish to gain an understanding of this important aspect of medicine."

"his reference work covers all aspects of the physical, psychological and social care of terminally ill patients. It also examines the social and spiritual aspects of support for patients' families, as well as the education and training of the professionals involved in terminal care."