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"When a person suffers from advanced, progressive illness, palliative care ? treatments that improve the physical and psychological quality of life of patients and their families ? can be just as important as treatments that aim to slow or prevent disease progression. Aimed at GPs and trainees, Palliative Care in Clinical Practice offers an accessible and practical introduction to palliative medicine, including a chapter devoted to each of the key areas of symptom management. Clearly and concisely written and fully illustrated throughout, it will be a useful resource for all healthcare professionals who wish to gain an understanding of this important aspect of medicine."

"Berduka pada orangtua selama perawatan paliatif dapat mempengaruhi kualitas hidup anak dan keluarga. Penelitian kualitatif fenomenologi deskriptif ini bertujuan menggali pengalaman orangtua merawat anak kanker dengan kondisi paliatif. Wawancara mendalam pada 10 partisipan dan analisis data dengan Metode Colaizzi, menghasilkan 10 tema yaitu merawat dengan cinta, tetap berharap ada keajaiban, terus berjuang, berserah diri kepada Tuhan, perasaan tidak menentu, perubahan dalam kehidupan, menjadi perawat bagi anak, merawat anak tidak mudah, berusaha menjadi orang tua normal, dan mencari bantuan. Orangtua merawat anak dengan cinta, walaupun merasakan perasaan tidak menentu, kesulitan dan perubahan dalam kehidupan selama perawatan paliatif. Orangtua juga membutuhkan dukungan komprehensif dalam menjalankan perannya sebagai pengasuh utama bagi anak yang merawat dengan cinta. Perawat dan semua pihak terkait diharapkan dapat berkolaborasi dalam memberikan asuhan paliatif yang komprehensif dan berkesinambungan pada anak dan orangtua.

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Grieving parents during palliative care may affect the quality of life of children and families. This qualitative research descriptive phenomenology aims to explore the experience of caring for children with palliative conditions. In depth interviews with 10 participants and data analysis with the Colaizzi methods, resulting in 10 themes, care with love, still hope there is a miracle, keep fighting, submission to God, mixed feelings, changes in life, being a caregiver for a child, caring for children is not easy, trying to be a normal parent, and seeking help. Parents care for their children with love, despite mixed feelings, difficulties, and changes in life during palliative care. Parents also need comprehensive support in performing their role as primary caregivers for caring children with love. Nurses and all parties are expected to collaborate in providing and ongoing palliative care to children and parents."

"Perawatan paliatif adalah pendekatan layanan kesehatan yang dapat meningkatkan kualitas hidup pasien dan keluarga. Penelitian ini bertujuan untuk menyelidiki hubungan antara pengetahuan perawat tentang perawatan paliatif dan sikap perawat terhadap pasien dengan penyakit terminal di Dr. RSUPN. Ciptomangunkusumo, Jakarta. Ini adalah penelitian survei deskriptif kuantitatif dengan desain Cross Sectional yang melibatkan semua perawat di bangsal penyakit terminal. Analisis menemukan bahwa ada 148 perawat dengan pengetahuan baik (91,9%) dan 87 perawat dengan sikap baik (54%). Juga, hasil penelitian menunjukkan bahwa tidak ada korelasi yang signifikan (nilai p = 0,070) antara tingkat pengetahuan perawat dan sikap mereka terhadap pasien dengan penyakit terminal.

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Palliative care is a health care approach that can improve the quality of life of patients and families. This study aims to investigate the relationship between nurses knowledge about palliative care and nurses attitudes towards patients with terminal illnesses at Dr. RSUPN. Ciptomangunkusumo, Jakarta. This is a quantitative descriptive survey research with Cross Sectional design involving all nurses in terminal disease wards. The analysis found that there were 148 nurses with good knowledge (91.9%) and 87 nurses with good attitude (54%). Also, the results showed that there was no significant correlation (p value = 0.070) between the level of nurses' knowledge and their attitudes towards patients with terminal illness."

"Neonatus yang memiliki penyakit yang mengancam jiwa dan bersifat progresif, memerlukan perawatan paliatif. Perawatan secara aktif dan total diberikan menurut tanda dan gejala. Tujuan penelitian ini adalah mengidentifikasi gambaran lima kasus asuhan keperawatan paliatif dan akhir kehidupan di NICU dengan Model Konseptual Sistem dan mengidentifikasi hasil implementasi Evidence-Based Nursing edukasi mengenai perawatan neonatus dengan kondisi paliatif dan akhir kehidupan. Teori Model Konseptual Sistem Betty Neuman dapat diterapkan pada neonatus dalam kondisi paliatif dan akhir kehidupan yang membutuhkan perawatan secara holistik. Hasil gambaran asuhan keperawatan yang dilakukan yaitu Pasien 1 neonatus kondisi diagnosis medis Gemelli conjoined twin diencephali dipus dibrachius. Pasien 2 neonatus dengan diagnosis medis extreme preterm NEC grad III. Pasien 3 neonatus dengan diagnosis medis very preterm extremely low birth weight dengan perburukan marker infeksi dan anemia normositik normokrom. Pasien 4 neonatus dengan diagnosis medis PDA besar post ligasi. Pasien 5 neonatus dengan diagnosis medis polycystic kidney.Diagnosis keperawatan yang terdapat pada kelima bayi tersebut adalah masalah respirasi. Intervensi sekunder dan tersier dilakukan dalam pencegahan dampak dari tanda dan gejala yang dialami bayi. Evaluasi yang didapatkan kelima bayi meninggal, hanya satu bayi meninggal dengan rekonstitusi kesejahteraan tinggi. Implementasi penerapan edukasi kepada perawat didapatkan hasil terdapat perbedaan pengetahuan dan keterampilan yang signifikan antara kelompok intervensi dan kelompok kontrol, setelah dan sebelum dilakukan edukasi (p value 0.000). Berdasarkan penelitian ini mengindikasikan pentingnya edukasi perawat mengenai panduan prosedur perawatan akhir kehidupan pada neonatus dan panduan skoring tingkat keparahan serta tingkat risiko kematian pada neonatus sebagai pencegahan terjadinya dampak dari tanda dan gejala kondisi paliatif pada neonatus berdasarkan evidence-based practice.

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Neonates with life-threatening and progressive disease require palliative care. Active and total care is given according to signs and symptoms. The purpose of this study was to identify five cases of palliative and end of life nursing care in the NICU using the Systems Conceptual Model and to identify the results of the implementation of Evidence-Based Nursing education regarding neonatal care with palliative and end of life conditions. The theory of the Betty Neuman Systems Conceptual Model can be applied to neonates in palliative and end-of-life conditions who require holistic care. The results of the nursing care description carried out were Patient 1 neonate with a medical diagnosis of Gemelli conjoined twin diencephali dipus dibrachius. Patients with 2 neonates with a medical diagnosis of extreme preterm NEC grad III. Patient 3 neonates with medical diagnosis of very preterm extremely low birth weight with worsening infection markers and normochromic normocytic anemia. Patient 4 neonates with medical diagnosis of post ligation large PDA. Patients with 5 neonates with a medical diagnosis of polycystic kidney. The nursing diagnosis found in these five babies was respiratory problems. Secondary and tertiary interventions are carried out in preventing the impact of the signs and symptoms experienced by the baby. The evaluation obtained from the five babies died, only one baby died with high welfare reconstitution. The implementation of the application of education to nurses showed that there were significant differences in knowledge and skills between the intervention group and the control group, after and before the education was carried out (p value 0.000). Based on this research, it indicates the importance of educating nurses regarding guidelines for end-of-life care procedures in neonates and guidelines for scoring severity and risk of death in neonates as prevention of the impact of signs and symptoms of palliative conditions in neonates based on evidence-based practice."

"This book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts."

"Kanker paru merupakan kanker dengan angka kematian tertinggi di dunia. Kanker paru pada awalnya tidak menimbulkan gejala spesifik hingga sel kanker terus berkembang, sehingga sebagian besar pasien kanker paru sudah berada pada stadium lanjut ketika mencari pertolongan kesehatan. Gejala yang dirasakan oleh pasien pada umumnya timbul ketika sel kanker telah menyebar ke nodus limfa maupun ke rongga pleura, sehingga timbul berbagai gejala yang dapat memengaruhi kualitas hidup pasien. Hal tersebut membuat asuhan keperawatan paliatif berperan penting dalam manajemen gejala kanker paru. Adapun masalah keperawatan yang sering ditemukan pada pasien kanker paru stadium lanjut adalah nyeri kronik. Intervensi untuk mengatasi masalah nyeri kronik dapat berupa manajemen nyeri farmakologis dan non-farmakologis, salah satunya adalah pijat aromaterapi. Penerapan pijat aromaterapi dapat meningkatkan relaksasi fisik dan psikis yang dapat mengurangi persepsi nyeri pada pasien. Efektivitas pijat aromaterapi dinilai berdasarkan pengukuran intensitas nyeri, frekuensi denyut jantung, serta tekanan darah sebelum dan sesudah intervensi. Hasil intervensi selama empat hari menunjukkan adanya penurunan intensitas nyeri pada pasien, penurunan frekuensi denyut jantung pasien, frekuensi pernapasan, serta tekanan darah sistolik dan diastolik.

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Lung cancer is the leading cause of cancer mortality worldwide. Most of lung cancers are diagnosed at the advanced stage, which affects the survival rate of lung cancer. As a result, the palliative care needs for patients with lung cancer are high and distressing, including high symptom burden that affects quality of life. Most of the symptoms experienced by the patients are due to the tumor metastasis in the lymph nodes and pleural space. Chronic pain is common in patients with advanced stage of lung cancer. There are pharmacologic and non-pharmacologic management of chronic pain. Aromatherapy massage has been recognized as one of the most popular complementary treatments in oncological and palliative settings. It is thought to have effects regarding improving blood circulation, muscle relaxation, and affecting emotions via physical and olfactory stimulation. The outcome measures of aromatherapy massage were evaluated by measuring the pain intensity, heart rate, and blood pressure before and after the intervention. Decreased pain intensity along with decreased heart rate and blood pressure after four sessions of aromatherapy massage were found in this study"